By A.P. Patient 53 years old
My experience with lung cancer started early last year. After intolerable back pains, I visited an orthopedist, who recommended a scintigraphy. And this was the first of a series of tests, leading to advanced cancer diagnosis, originated in lungs. Cancer is a constant race, filled with emotions that vary from day to day. Distress, fear, sadness, hope. Supported by my family, I started treatment, “fortunate” enough to have been tested positive for a certain biomarker, after comprehensive molecular screening. I also joined a clinical trial abroad, where my case is followed by a large number of scientists. I now feel safer, being part of such an advanced medical procedure. Right after diagnosis, there were no delays, we acted rapidly and I must tell that the treatment plan progressed very well. I remember my doctor saying: “Your life is not in danger.” I still continue my check-ups, my therapies, as instructed. However, I would like to share a major complaint about my lung cancer journey. I experienced a gap in information, I might say a lack of communication, a lack of empathy from health professionals, which I could not handle. I cried all the time, not only because of lung cancer but also because of this attitude, during my appointments. I would ask for details about MY cancer and the answers were short and vague. So I would cry more and feed the cancer. Then, I considered psychological support and reached out to FairLife L.C.C. I have to say that sessions played an enormous role in my mental health. I always look forward to the next session, a burden is lifted off my shoulders and I get the courage to carry on. Before, I was actually very angry but thankfully I received that support, for I am deeply grateful. Patients need to hear“ It will be okay“. In addition to the treatment plan, we definitely need to be emotionally supported, not only by our relatives, but mostly by professionals, to be able to open up about our fears and concerns. It is so important to be heard. To be offered help that is meaningful. In short, I would like to stress the need for a holistic approach to lung cancer, for better cooperation between patients and doctors, for better physician-patient relationships. Patients are entitled to know, to be informed, to ask questions and receive answers. We have rights.
January 23, 2023
